Mrkirtley800 Posted December 27, 2015 Share Posted December 27, 2015 Agree whole heartedly with that last comment. I have a lot to be thankful for. Derek Link to comment Share on other sites More sharing options...
RMweb Gold chris p bacon Posted December 28, 2015 RMweb Gold Share Posted December 28, 2015 I should be so lucky. Hypogammaglobulinemia. As an answer, it's right up there with Chinese Crested Powder Puff's.....You what?..... Had it since the 1980's, but an infusion every two weeks enables me to live a full and healthy life. A massive thank you to the NHS..... Oh Dear, my comiserations. As a regular donor there is every chance you have a bit of me in you now. You'll be alright until you feel the urge to install 53 Tortoise motors Link to comment Share on other sites More sharing options...
gordon s Posted December 28, 2015 Author Share Posted December 28, 2015 Many thanks for that, Dave.... It's coming up for 30 years now and I have to admit when I was first told, I thought it would be a huge problem, but compared to others, it's no big deal at all. Twenty years ago, we were trained to do intravenous treatments at home, so every couple of weeks my wife sticks a needle in my arm. I've learned not to get into an argument when it's due..... Doing it at home is so much better, as originally I had to go into hospital for the day every two weeks. She's great and just gets on with it. I normally do it on a Sunday to tie in with sport on the TV, so just put my feet up for a couple of hours. A doctor once told me that each treatment costs around £1,500, so that's the best part of £40,000 a year.....and it's 28 years now. As I said, God Bless the NHS.... Link to comment Share on other sites More sharing options...
RMweb Gold chris p bacon Posted December 28, 2015 RMweb Gold Share Posted December 28, 2015 £40k a year. . . . Blimey all I get is a tea and a biscuit. . Next time I'm taking a bag of crisps too. . . if they'll let me. Without being too nosey I'm guessing you get a blood product rather than a whole unit. I'm O neg so a universal donor, they always want people like me for whole units as in an emergency mine can be given to anyone without type matching. Link to comment Share on other sites More sharing options...
gordon s Posted December 28, 2015 Author Share Posted December 28, 2015 Yes, it is a blood product derived from plasma, but is totally clear. I have no problem talking about it as others may suffer the same problem and may feel alone or have no one to talk to about what life holds in store. I've been infusing for so long now, I don't give it a second thought. You're right though, you should get two biscuits at least.... 5 Link to comment Share on other sites More sharing options...
RMweb Gold farren Posted December 28, 2015 RMweb Gold Share Posted December 28, 2015 (edited) They just leave the biscuits on the table where I go. And a arm full of blood must be worth at least 2 biscuits I would say Edited December 28, 2015 by farren Link to comment Share on other sites More sharing options...
RMweb Gold chris p bacon Posted December 28, 2015 RMweb Gold Share Posted December 28, 2015 There was a bit of a revolt when they took away the TUC biscuits, they had to put away the comment cards as all they had written on them were "No TUC biscuits = no blood" I reckon the Bourbons will be next. 1 Link to comment Share on other sites More sharing options...
trisonic Posted December 29, 2015 Share Posted December 29, 2015 A+ here. I always used to give blood until I picked up a weird virus whilst in Japan. Got the cold shoulder after that! Everyone should try it... Best, Pete. 1 Link to comment Share on other sites More sharing options...
aardvark Posted December 29, 2015 Share Posted December 29, 2015 O+. Donor over many years until I got an SCC. They got a bit squeamish about the possibility of giving the patients something extra in the transfusion Link to comment Share on other sites More sharing options...
RMweb Premium 45156 Posted December 29, 2015 RMweb Premium Share Posted December 29, 2015 I was also a donor in my younger days, but my medication regime now means that I am no longer. Link to comment Share on other sites More sharing options...
emt_911 Posted December 29, 2015 Share Posted December 29, 2015 Still a donor O+ Link to comment Share on other sites More sharing options...
RMweb Gold martin_wynne Posted December 29, 2015 RMweb Gold Share Posted December 29, 2015 I recall turning up years ago to give the specified armful. I mentioned that I was allergic to penicillin and was immediately shown the door. No tea or biscuits. Nowadays I have to be careful because of the residual antibiotics often found in meat. Chicken in particular often makes me ill, and I don't eat turkey at Christmas. I mentioned this to the doc, and asked him whether cooking ought to destroy any penicillin in it. His highly technical reply was "Search me, but I've got an idea -- don't eat chicken." Martin. Link to comment Share on other sites More sharing options...
gordon s Posted December 29, 2015 Author Share Posted December 29, 2015 Of course all of this means I'm probably blood related to most of you on here..... Link to comment Share on other sites More sharing options...
trisonic Posted December 29, 2015 Share Posted December 29, 2015 Hey, Bro! Best, Pete. 1 Link to comment Share on other sites More sharing options...
RMweb Gold farren Posted December 29, 2015 RMweb Gold Share Posted December 29, 2015 (edited) Of course all of this means I'm probably blood related to most of you on here..... New years dinner at yours then! Bags a good chair don't want that chair no one ever uses until there's no other available. Oh sorry personally I think the letter "I" is overrated Edited December 29, 2015 by farren Link to comment Share on other sites More sharing options...
gordon s Posted December 29, 2015 Author Share Posted December 29, 2015 What's a char?.... Link to comment Share on other sites More sharing options...
RMweb Gold PhilH Posted December 29, 2015 RMweb Gold Share Posted December 29, 2015 You mean you don't know? Me neither..... Link to comment Share on other sites More sharing options...
RMweb Gold Rowsley17D Posted December 29, 2015 RMweb Gold Share Posted December 29, 2015 O neg here, heading towards 60 armfuls. While have a bit of laugh on here, the blood service folk say that of the people who could donate only 5% do. Used to be called twice a year when I first started donating, now it's three times. So how about it RM Webbers for the New Year and help more folk like Gordon? All the best everybody. Link to comment Share on other sites More sharing options...
RMweb Premium New Haven Neil Posted December 29, 2015 RMweb Premium Share Posted December 29, 2015 They don't want mine on several counts unfortunately - hospitalisation in furrin lands years ago mostly to blame, meds regime nowadays also. I tried again recently but got the same answer. Mrs H gives twice a year. Link to comment Share on other sites More sharing options...
aardvark Posted December 30, 2015 Share Posted December 30, 2015 What's a char?.... It's what we have for dinner when it's my turn to cook Link to comment Share on other sites More sharing options...
RMweb Gold Ramblin Rich Posted December 31, 2015 RMweb Gold Share Posted December 31, 2015 I agree the blood donation service is in need of donors, I used to donate but had a transfusion following on operation right around the time of CJD, now they can't guarantee I'm free of prions so won't accept my blood! All the best Gordon, really hope this version of ET hits the spot for you and we get the vicarious pleasure of seeing trains move - and prove 00-SF works too... Link to comment Share on other sites More sharing options...
RMweb Gold pirouets Posted December 31, 2015 RMweb Gold Share Posted December 31, 2015 So if I understand all of this given I am still trying to get my head round how to pronounce the thing You have something that makes you feel a bit cack. There is a magic potion to help you along Your wife gets to stab you every couple of weeks And for that you get to watch an afternoon of sport. All supported by the NHS which rocks. Leads me to ask one simple question. Did this thing start before or after your addiction to cutting up wood and dreaming about inclines? How's the golf by the way? I've finally started playing again but the course is soggy as anything. Link to comment Share on other sites More sharing options...
gordon s Posted December 31, 2015 Author Share Posted December 31, 2015 My love of trains started in the 50's with my Trix Twin 0-4-0 on 16vAC and bakelite track. I did try to build a bedroom layout in Triang TT when I was 14, but then scooters/cars and girls came along so no more railway action until the mid 2000's as I started to look forward to retirement. I was found to have CVID in 1988 and is probably a development of ulcerative colitus which I've had since '62. Haven't played golf for a couple of weeks as we've had family all here over Christmas. First game will probably be on the 4th Jan and then it's regular play for the rest of the year. I'm currently stuck on 16, but determined to get down to 12 by the end of 2016.... The magic potion is great and touch wood, the number of infections I have each year is minimal. One or two if I'm unlucky, so it definitely works. Anyone who didn't know me would never know what goes on behind the scenes..... The good news is that I cut up some more paper templates this afternoon in a spare hour, so ET will progress as planned. Just taken delivery of a Hornby J50, so it will work..... 6 Link to comment Share on other sites More sharing options...
RMweb Gold BoD Posted December 31, 2015 RMweb Gold Share Posted December 31, 2015 Wow Gordon, 100 pages. Well done. Much fewer than the European directive on the shape of cucumbers but there's still time. 3 Link to comment Share on other sites More sharing options...
emt_911 Posted December 31, 2015 Share Posted December 31, 2015 Gordon, wishing you all a happy, healthy and prosperous 2016 Link to comment Share on other sites More sharing options...
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