Andrew P Posted January 16, 2017 Author Share Posted January 16, 2017 All the best Brian, there are people on here that can give more help and knowledge than I can give but they are here for you. Link to post Share on other sites More sharing options...
RMweb Premium BSW01 Posted January 16, 2017 RMweb Premium Share Posted January 16, 2017 Thanks Jamie. Although the reading is still very low and that the rise doesn't mean that the cancer is back, nonetheless it is still a little worrying. Fingers crossed for the next set of tests in July. Link to post Share on other sites More sharing options...
Baby Deltic Posted January 16, 2017 Share Posted January 16, 2017 (edited) I lost my dad to lung cancer nearly four years ago. He used to smoke a pipe, although he had long given up smoking. He had served for twelve years in the Royal Navy from 1950 to 1962 at a time when most ships were powered by steam turbines and full of asbestos, plus he served in the Fire Service from 1964 to 1987, so he must have breathed in all sorts of stuff. He developed small cell lung cancer which is very aggressive and practically untreatable. He kept coughing and I kept on at him to go and see his GP. By the time he actually went for tests it was already in his lymphatic system. He had chemo therapy and radiotherapy but he went downhill very quickly and passed away about 6 months after he was diagnosed. Edited January 16, 2017 by Baby Deltic Link to post Share on other sites More sharing options...
RMweb Premium Gwiwer Posted January 16, 2017 RMweb Premium Share Posted January 16, 2017 Thanks Jamie. Although the reading is still very low and that the rise doesn't mean that the cancer is back, nonetheless it is still a little worrying. Fingers crossed for the next set of tests in July. All the best. Keep us posted. Link to post Share on other sites More sharing options...
johndon Posted January 20, 2017 Share Posted January 20, 2017 I lost my Dad to bowel cancer in June 2014 and six months to the day later, my wife was diagnosed, out of blue, with a brain tumour and given 12 months to live but, unfortunately, she died 4 months later in April 2015. John Link to post Share on other sites More sharing options...
Lady_Ava_Hay Posted January 27, 2017 Share Posted January 27, 2017 I've already posted this on another thread, but thought that I'd post this on here too. Today I got the results of last weeks blood test, my PSA has risen slightly, from <0.1, (a figure it has been at since May 2013) to 0.2. It's still very low, but the fact that it has risen does give me cause for concern, I just hope that it doesn't start to rise further. A PSA level that low is basically insignificant. Clinically it would be of no interest whatsoever to an Oncology professional under 35. I am currently running at 24 and steadily rising. Nevertheless my general health remains good and I am awaiting referral for a specialist treatment. It is a general rule that PSA levels under 6 and even rising around that level re of little concern. You have no need to worry.....except about modelling!! 1 Link to post Share on other sites More sharing options...
RMweb Premium jamie92208 Posted March 3, 2017 RMweb Premium Share Posted March 3, 2017 Not a good day for my wife Beth Her friend died today, fortunately the end was quite swift and Beth is glad that she was able to enjoy a week with her friend at a Warners resort in January. Her two children are in a bad place as her estranged husband, their dad, was found dead 2 days ago. Not a lot else to say at the moment. All I can do is try and support Beth. Jamie Link to post Share on other sites More sharing options...
RMweb Premium Gwiwer Posted March 3, 2017 RMweb Premium Share Posted March 3, 2017 (edited) Sorry to hear that Jamie and please give Beth my best wishes and support Yesterday was not the best day I have ever had either. Father passed away at 3.15pm just over an hour after I had reached his hospital bedside from Melbourne via London. We had some months to prepare as he was clearly on a downward slope when I saw him last June. We knew he suddenly stopped eating at a level which could sustain him. He has made several visits to hospital over the months. In the end the final moments were totally peaceful and apparently pain free. He simply stopped breathing as we held his hands. The cause of death has been given as colonic cancer. I have not been made aware of the problem though it is emerging that other family members including my wife were aware. This is not the time and place to ask why. Dad lived a long and active life. He passed just shy of his 90th birthday and his 62nd wedding anniversary. Times were not at all easy for much of his life nor was it altogether happy at times. But he would have given his last penny if it would have made a difference to us. He has been described as a true gentleman. Along with mum, my sister and our wider family we shall miss him very much indeed. Edited March 3, 2017 by Gwiwer 1 Link to post Share on other sites More sharing options...
Andrew P Posted March 3, 2017 Author Share Posted March 3, 2017 Hi Jamie and Rick, Sorry to read of the terrible news from you both tonight. Link to post Share on other sites More sharing options...
laurenceb Posted March 3, 2017 Share Posted March 3, 2017 Condolences Jamie& Rick 1 Link to post Share on other sites More sharing options...
Andrew P Posted June 4, 2017 Author Share Posted June 4, 2017 (edited) Just thought I would Bump this thread, I hadn't realised it had been OVER year since we lost our on line friend, Jock. He is still missed by many on here for his wide and varied contributions to R M Web. Edited June 4, 2017 by Andrew P 2 Link to post Share on other sites More sharing options...
RMweb Gold Enterprisingwestern Posted June 4, 2017 RMweb Gold Share Posted June 4, 2017 Father passed away at 3.15pm just over an hour after I had reached his hospital bedside from Melbourne via London. Something happens with people on deaths doorstep to make them hang on. In a similar scenario from a few years back, my father in law, who had throat cancer and had been taken off treatment earlier on in the week as he wasn't expected to see the night out, lasted until the saturday afternoon, when my brother in law, who had a very high powered job in an American company and couldn't get there immediately, finally arrived from Boston USA via Japan, A strange thing the human body. Mike. Link to post Share on other sites More sharing options...
RMweb Premium Gwiwer Posted June 4, 2017 RMweb Premium Share Posted June 4, 2017 Just thought would Bump this thread, I hadn't realised it had been OVER year since we lost our on line friend, Jock. He is still missed by many on here for his wide and varied contributions to R M Web. Thank you Andy. Yes we miss Jock just as those of us who have lost loved ones miss them. He was very much a part of our family here. This topic, created with the support of his family, exists to offer friendship and support to those bereaved by, suffering from, recovered from or in any way affected by cancer. You are not alone. We are free to speak here among friends. 9 Link to post Share on other sites More sharing options...
Purley Oaks Posted September 14, 2017 Share Posted September 14, 2017 Had my annual scan and blood test results yesterday. Blood cancer markers appear fine at <2.0, which sadly masked the fact my bowel cancer (successful op and chemo two years ago) has spread to become peritoneal disease. The peritoneum is a mucus membrane which allows our internal organs to rub together as we move. Anyway, there's a malignant growth along a small part of this membrane; it hasn't grown into any organs yet, but is a surface covering. I'm due to see the specialist next week, which is great, but told they cannot operate and will have to rely on more chemo. And I'll be changing my diet to organic, mainly plant-based, eschewing booze, too. It's a real nuisance because we're meant to be heading to Berlin next week - Finlay is taking part in the marathon there on 24th (also German election day!), ironically for cancer charities - and also because I feel fine, and everyone says how well I look. And I do! Apparently blood markers only work for 70% of us... Will report back next week Mal Link to post Share on other sites More sharing options...
RMweb Premium Gwiwer Posted September 14, 2017 RMweb Premium Share Posted September 14, 2017 Mal Sorry to hear it hasn't all been plain sailing for you. I gather it seldom is in reality even for those who are nominally in the clear. I wish you all the best as you take the next steps. While here I should also record that I too may require some further attention. The surgery which preceded my radiotherapy resulted in an overall improvement in function for five years but more recently (perhaps not noticed over rather longer) there has been some sort of regrowth of skin tissue. Hopefully not cancerous - and it certainly doesn't appear that way - more a case of the body trying to replace what was taken from it. But not 100% as it should be. The effect is that, to be blunt, I cannot reliably predict which way the waterworks will go no matter how good the aim. I shall parade before the GP, who hasn't seen me before as this is post-relocation, and produce my clinical notes for his perusal. What happens then I know not at this stage. It's inconvenient rather than worrying, to be fair. But it's not right and it could be attended to. Link to post Share on other sites More sharing options...
Waverley West Posted September 14, 2017 Share Posted September 14, 2017 Mal and Rick, my very best wishes to you both. Link to post Share on other sites More sharing options...
Andrew P Posted September 14, 2017 Author Share Posted September 14, 2017 Mal and Rick, I'm thinking of both you Guys, do all you can to keep well and posting here and elsewhere. All the very best, Andy. Link to post Share on other sites More sharing options...
The Lurker Posted September 14, 2017 Share Posted September 14, 2017 Mal sorry to read of your latest news. The way you have (publicly) coped with your bowel cancer is a marked contrast to my FiL, whose idea of eschewing the booze was to cut down to one bottle of red a day. In his case, it is the ops that have caused him the majority of his problems. Rick I hope that the new GP is helpful. All the best to you both Link to post Share on other sites More sharing options...
RMweb Premium BSW01 Posted September 15, 2017 RMweb Premium Share Posted September 15, 2017 Mal, Rick Fingers crossed and my thoughts are with you both. Link to post Share on other sites More sharing options...
Purley Oaks Posted November 30, 2017 Share Posted November 30, 2017 Hi all Had an appointment with the Peritoneal Malignancy Institute, part of Basingstoke NHS hospital, last Friday. The consultant was very good, and seemed much more optimistic than my oncologist. First of all he took some time to run through my CT scan and mentioned, in passing, that the main cancer could just be scar tissue from the removal of my appendiceal cancer. Peritoneal cancer occurs in 30% of those who have had appendiceal cancer and, more commonly, in a small number of those who have ovarian cancer. The good news is that I am suitable for the HIPEC operation; the bad news is that it'll be a gruelling 5 hours (but not bad when you consider that some HIPEC ops can take 15 hours) where they remove the cancers and hunt around for any more then wash the whole area in hot 42C chemotherapy solution, which doesn't have the same side-effects as the intravenous. I'll be around 3 weeks in hospital, the first 2-3 days after the op in intensive care. They have a flat that Gabe (my wife) can stay in whilst I'm there, which is great. I'll find out when the op is next Tuesday, but it will be in December or January. The sooner the better for me. What is concerning is that I did the spadework and found out about this op rather than my oncologist; so I suggest that after a cancer diagnosis, which itself can be pretty devastating and lead to you freezing-up mentally for a few days, that we all take some charge over our conditions to some extent and do some legwork to find if there are suitable operations, treatments, trials etc that we're suitable for. I imagine that NHS Scotland will reimburse NHS England for the treatment, but honestly don't know how it works. The only other hospital to carry out this surgery in the UK is Christie's in Manchester. Will let you know when I'm being admitted to Basingstoke, and be in touch sometime afterwards, too. By the way, I feel well, I look good, and the vegan diet is going well. Did have a beer or two after the Scotland-Australia game, though! Mal Link to post Share on other sites More sharing options...
RMweb Premium jamie92208 Posted November 30, 2017 RMweb Premium Share Posted November 30, 2017 All I can do is wish you all the best Mal and please keep us posted as to how things go. Jamie PS, I was only thinking about how much we miss Jock as I was reading ER's a few minutes ago then your post turned up. Link to post Share on other sites More sharing options...
The Lurker Posted November 30, 2017 Share Posted November 30, 2017 Mal thoughts are with you. I hope things go well, Your suggestion of taking charge is a very good one indeed. 1 Link to post Share on other sites More sharing options...
Andrew P Posted November 30, 2017 Author Share Posted November 30, 2017 Yes as the other Guys have said Mal, all the very best, and please keep us informed of your recover. Andy. Link to post Share on other sites More sharing options...
laurenceb Posted November 30, 2017 Share Posted November 30, 2017 As others have said best of luck Mal 1 Link to post Share on other sites More sharing options...
spikey Posted November 30, 2017 Share Posted November 30, 2017 ... I suggest that after a cancer diagnosis, which itself can be pretty devastating and lead to you freezing-up mentally for a few days, that we all take some charge over our conditions to some extent and do some legwork to find if there are suitable operations, treatments, trials etc that we're suitable for. And I'll second that, based on our experience since my wife was diagnosed with breast cancer almost exactly 6 years ago. I'll just say that if we knew then what we know now, for one thing my wife would never have allowed herself to be talked into the breast reconstrcution she had at the time of her mastectomy, and for another it wouldn't have taken 4 years for us to get the specialist physiotherapy she needed to help her regain as much shoulder strength and functionality as she's going to get. You really do need to become your own expert. And be persistent ... Link to post Share on other sites More sharing options...
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