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Jock67B's Cancer Ward (Cancer Support and Discussion Thread)


Andrew P
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Thanks, I’m back in work tomorrow, hopefully cremation for my mum week after next with close family attending then she is having a church service in llwyngwril the week after with an almighty knees up in Tywyn for all her friends and wider members of the family to attend 

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Jim, I really do know how you feel.  I lost my dad to lung cancer in March this year aged 82 (and he never smoked a fag in his life!) The cruelty is he stayed very fit until his diagnosis.

My wife and I looked after him full time for two years - he lived on his own and luckily we weren't working or I'm not sure how we all would have coped. Not wanting to add to the negativety, but I have to say the support we receieved from various cancer support organisations was pretty minimal - sad but true. He eventually passed whilst in a lovely care home in Leigh (Lancs) with my wife & I at his bedside.  I don't know about you Jim but we didn't realise the mental and physical toll it was to put us through - by the end we both were really at rock bottom - exhausted, ill with worry and mentally shot - its going to take a while to recover.

 

He wasn't religious by any stretch so at his funeral we tried to make it more a celebration of his life than mourning his passing - and with good friends and family I think thats how it turned out.

 

All the best to you Jim - and heres raising a glass to you and and your mum.

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3 hours ago, bike2steam said:

Got home after 3 weeks in hospital for a bone-marrow stem-cell transplant, with most of it in isolation as an anti-infection procedure. Feeling better than I have for months, although the procedure has left me somewhat weak, for now, but things will improve or so I'm told. Progress will be under close scrutiny. Life is good.

 

Glad to hear from you, Paul. I had been a bit concerned that I hadn't noticed any postings from you recently. I hope your treatment has got you truly on the mend.

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On 21/05/2019 at 22:44, Ian J. said:

 

Glad to hear from you, Paul. I had been a bit concerned that I hadn't noticed any postings from you recently. I hope your treatment has got you truly on the mend.

Thanks Ian, I'm under orders from my specialist to take it easy ( not difficult!) for a fortnight at least, after which my dear wife has arranged a week away (somewhere??), then when I get back, I must get on with my new layout which I desperately want to get finished - so there's plenty to get done.:sungum:

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I've had my 12 monthly post op colonoscopy today; it's all looking good. No sign of any tumour, not even a polyp in sight.

I've got a scan on Saturday just to make sure nothing's spread anywhere else, so a bit of good news for a change.

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14 minutes ago, rab said:

I've had my 12 monthly post op colonoscopy today; it's all looking good. No sign of any tumour, not even a polyp in sight.

I've got a scan on Saturday just to make sure nothing's spread anywhere else, so a bit of good news for a change.

 

Great news rab.  Upwards and onwards from now.

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7 minutes ago, rab said:

 

A follow up from my post a few weeks ago, we had the results

of my scan today, and I am now officially cancer free!!!

 

Let the layout building commence!!!

Cancer treatment has advanced so much in my lifetime. Simply delighted to hear of yet another success!

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4 hours ago, Oldddudders said:

Cancer treatment has advanced so much in my lifetime. Simply delighted to hear of yet another success!

 

I must admit I hesitated about my post.

While I have good news I know there are others

who are not getting the success I've been fortunate to have.

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Excellent news Brian

 

It can perhaps be thought of as insensitive to make such statements in a place where not everyone has the same outcome but I firmly believe that we who have been on, or who are still on, that road benefit hugely from positive stories and good news.

 

When I was having daily radiation it was very apparent that not all patients were likely to survive and that a few were very much on palliative treatment managing pain until the inevitable.  But the atmosphere in the unit was always up-beat with everyone being welcomed by name by reception and treatment staff and by the consultants.  I was told several times, too, that my bright and breezy personality was a ray of light among those who sometimes found themselves in a dark place.

 

All of us who have a good news story to tell should be happy to share it here without being concerned that it may have a negative effect on others.  It won't.

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This morning I had a phone conversation with one of the trial nurses at ‘The Christie Hospital’ regarding my latest PSA test results. They’ve decided that they’d like to see me again within the next 6 weeks. So hopefully, by the end of the week, I should have received appointments for another PSA test, which will be done the week before my consultation with the urologist. This is a bit of a surprise,but given that the latest readings have jumped considerably (risen from 0.75 to 5.5) I’m hoping it’s just a precautionary measure.

 

However, up until this year, all my previous PSA tests were carried out at The Christie and they were all quite low (less than 1) so it may be that they want to check again to make sure that there isn’t a discrepancy between the 2 different labs. 

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This morning I had my consultation with my urologist/oncologist at ‘The Christie’ following last weeks blood test. It was revealed that my PSA had actually come down a little bit and is now 5.16 instead of last month’s 5.5. So the plan is that they will be to do no further tests, but they will once again be monitoring my PSA levels every 3 months for the next 2 years or so. This is to gauge what my natural PSA level is and to catch anything early, if there is a significant rise, ie. it rises to between 10 and 15. If/when it does reach that level, then they will start carrying out further tests and scans to see why. 

 

I’ve now got my next 2 appointments for November, they are a week apart and the first is for a blood test and the second for my next consultation to discuss the blood test. So until then I just carry on as normal. 

 

Both Sheila and I are a little relieved, but to be honest, it is what I was expecting and I do think that monitoring the situation and not doing anything invasive at the moment is probably the best outcome at the moment.

 

Brian

 

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